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External Resources
Below is a listing of Web sites where you can obtain helpful information about transplantation, organ donations, emerging trends, real-life experiences, and more.
*Genentech is neither affiliated with nor endorses any of the following organizations. The information provided by Genentech or these organizations is meant for informational purposes only and is not meant to replace your medical advice.
Click on the logos to visit the different Web sites.
United Network for Organ Sharing (UNOS)® is a nonprofit, scientific and educational organization that administers the nation’s only Organ Procurement and Transplantation Network (OPTN), established by the US Congress. This Web site has information on organ donation, transplantation procedures, and transplant living
transplantliving.orgSM is dedicated to providing up-to-date, comprehensive online resources for transplant patients and their families. This Web site features information about a full range of medications, treatments, emerging trends, and research available on the subject of transplantation
Transplant Recipients International Organization (TRIO)® is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families, and the families of organ and tissue donors. This Web site contains an extensive listing to links for organ-specific transplants
Scientific Registry of Transplant Recipients (SRTR) supports the ongoing evaluation of the scientific and clinical status of solid organ transplantation in the United States and maintains data on transplant recipients. This Web site contains facts and statistics about organ and tissue transplantation
www.organdonor.gov is the official US Government Web site for organ and tissue donation and transplantation. This Web site contains links to information on organ procurement organizations, donation and transplantation organizations, and transplant financial resources
TransWeb is a nonprofit educational Web site based at the University of Michigan. The site features news and events, real people’s experiences, facts and myths about donation, a donation quiz, a large collection of questions and answers, and a comprehensive reference area
Other Web sites that may be of interest to you
Click on the logos to visit the different Web sites.
The United Network for Organ Sharing (UNOS) has a listing of support groups, sorted by state, that includes the names and phone numbers of individuals to call for more information. It’s easy to access the Support Group section of the UNOS Web site.
There are many different types of support groups for transplant patients and their caregivers. Transplant patients have said that sharing concerns, fears, difficulties, experiences, and success stories with others can be comforting.
Many of you may enjoy reaching out to others, gaining confidence through shared experiences, enjoying social activities, and finding opportunities to promote organ and tissue donation. It also can be encouraging to meet recipients who have had their transplants for several years.
Types of support groups that may be available for transplant patients
*Genentech is neither affiliated with nor endorses any of the following organizations. The information provided by Genentech or these organizations is meant for informational purposes only and is not meant to replace your medical advice.
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Hospital Support Groups
Usually run by the hospital transplant coordinator, social worker, or other member of the transplant team. May consist of patients who are pretransplant or posttransplant or who are hospitalized with transplant-related problems -
Local Support Groups
Usually run by transplant patients. Groups consist of pretransplant and posttransplant patients and their families. Members who have already had their transplant help others with the adjustment to everyday life
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Telephone Networking
Available through a hospital or support group. Designed to introduce patients to others who share similar experiences, from the comfort of a patient's own home
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Internet Support Groups
Can provide patients with a broad range of experiences from all over the world. Also allow patients to ask personal questions they may not feel comfortable asking in person
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Professional Organizations
These groups provide educational seminars, materials, and activities, and may conduct fundraising events to support research and help shape healthcare policy
You may also access a detailed list of support group activities on the Transplant Living Community Calendar.